Five Key Takeaways for Finding the Right College for a Son with DMD

Preparing Sons with Duchenne Muscular Dystrophy for College: 5 Key Lessons Learned

Are you a parent of children with Duchenne muscular dystrophy (DMD) who have dreams of attending college? Or maybe you’re a teenager with DMD who never thought college was an option for you. Well, I have some inspiring news for you.

In a recent blog post, a mother shared her journey of preparing to send her son with Duchenne to college. Initially, she had doubts about whether college would be a realistic goal for her three sons with DMD. However, as her sons grew older, she realized that college was indeed a possibility, especially for her eldest son, Max, who has already started the application process.

Here are five valuable lessons she learned while helping her son choose a college:

  1. Visit more than one: It’s essential to explore a variety of college options to find the best fit. Don’t discount a school before visiting, as Max’s top choice ended up being a university he initially didn’t think he’d like.

  2. Don’t limit choices based on distance: While it may seem daunting to send a child with DMD far from home, it’s crucial not to limit their options. Max is considering living on a campus 90 miles from home, giving him the chance to experience college life fully.

  3. Not every college has ideal accommodations: Finding suitable accommodations for students with disabilities can be challenging. Some colleges may not offer the specific housing arrangements needed, so it’s essential to communicate with the disability office to explore all options.

  4. Talk to students with disabilities: Hearing from other students with disabilities who have lived experiences on campus can provide valuable insights into the support and accommodations available.

  5. Pay attention to the people: The campus environment and the people you meet can make a significant impact on the college experience. Inclusion, support, and a welcoming atmosphere can make a big difference for students with disabilities.

Preparing a child with Duchenne muscular dystrophy for college may come with its challenges, such as figuring out financial aid and arranging personal care assistance. However, the journey towards making college a reality is a significant accomplishment in the Duchenne life.

If you’re interested in learning more about this family’s experience and gaining valuable insights into the college selection process for students with DMD, be sure to check out the full blog post. It’s a heartwarming and informative read that will leave you feeling inspired and hopeful about the future possibilities for individuals with Duchenne muscular dystrophy.


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